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Korrie I started a new thread so that you wouldn't have to deal with the annoying very l--o--n--g text that happened when I put a very long web site address | wilds | Jun-16-04 12:00 PM by Heavensentme5 | 3 | 1023 |
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anyone else feel like this ? I haven't (yet) felt like there has been a time where I can just 'relax' and not worry about one of my boys' health (as much as any parents relaxes ab | wilds | Jun-26-04 04:28 AM by thejoyof3more | 14 | 1643 |
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liver/pancreatic/biliary problems Does anyone have kids with these problems or know anyone who does ? My DS has been having some ongoing problems that have been worsening and are very | wilds | Jun-28-04 11:37 PM by wilds | 0 | 820 |
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autism ?s I just posted this on another post in this forum.
<<We have one DS who is affectionately called the 'absent minded professor'. He has had some simila | wilds | Jul-17-04 06:47 PM by wilds | 5 | 892 |
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hyperlexia Thanks to Colleen I found some info on hyperlexia, and it fits my son exactly ! I didn't even know that there was a 'term' for describing the way he i | wilds | Jul-10-04 06:35 PM by 6BlueEyes | 9 | 1277 |
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jaundice/low wdc/high unconjugated billi/ dialated ...dialated common bile duct post cholycystectomy and recent ERCP.....
Any hematologists or hepatologists out there ??
Does any of this sound famili | wilds | Jul-05-04 06:49 PM by wilds | 0 | 757 |
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good peds GI/hepatologist San Diego ? I also posted this on the main forum, I am anxious to have a things lined up for any possibility.
We are waiting for some more test results, but know | wilds | Jul-11-04 12:22 AM by wilds | 2 | 1346 |
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feeling blessed This is really hard to explain to a parent (or anyone really) who doesn't have a child with 'special needs'. I feel overwhelmingly blessed to have all | wilds | Jul-19-04 11:35 AM by trpsn1 | 3 | 780 |
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vent about husband not getting it I also posted this on the main forum, but thought maybe some of you here could relate a little better. Thanks for reading.
My husband (note I am not | wilds | Jul-22-04 01:57 PM by Shannon G | 4 | 771 |
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polycystic kidneys ? My son has been diagnosed with another problems :-( called Caroli's disease. It is often accompanied by polycystic kidney disease. His liver ducts ar | wilds | Jul-25-04 09:09 PM by wilds | 2 | 809 |
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rare disorders My son who has already had major medical problems has recently been diagnosed with a very rare disorder- Caroli's disease and has a strong possibility | wilds | Aug-02-04 04:19 PM by wilds | 4 | 810 |
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poem HEAVEN'S VERY SPECIAL CHILD
by Edna Massimilla
A meeting was held quite far from Earth
"It's time again for another birth,"
said the angels to the | wilds | Aug-19-04 08:45 AM by trpsn1 | 3 | 703 |
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to tripletsinKzoo Melissa
I saw your post in response to Korrie's post @ ear tubes. I too have been through over 36 surgeries/proceedure s with one of my triplets alone. | wilds | Aug-22-04 09:09 PM by TripletsInKzoo | 2 | 885 |
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health and wellness ministry I posted this on the main forum too, and am hoping to get some really good ideas here from some fellow 'experts'
Our church is starting a 'health and | wilds | Sep-15-04 09:49 PM by wilds | 2 | 761 |
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just curious what everyone's children's special needs a...
| wilds | Jan-19-05 02:42 PM by Happy Mom of 7 | 22 | 3463 |
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song that gets to me every time ! I put these lyrics in another post and wanted to share it with you guys. It is comforting to me to hear about how others cope with the st | wilds | Oct-25-04 05:13 PM by wilds | 0 | 820 |
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chronic GI problems including liver Does anyone else out there have a child with chronic health problems with their GI tract ? Including chronic liver/biliary tract, small bowel, colon a | wilds | Nov-07-04 09:51 PM by wilds | 0 | 768 |
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celebrating Holland Here's the original Welcome to Holland poem that many of you have seen and a celebrating Holland poem
The following is written by Emily Perl Kingsley | wilds | Nov-13-04 06:00 PM by Heavensentme5 | 1 | 931 |
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translplants or liver disorders ? Anyone have a child that required an organ transplant ? Or a liver disorder ? We don't know for certain exactly what my son's liver disorder is, but w | wilds | Feb-22-05 06:44 PM by bscheve | 15 | 1628 |
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caringbridge sites ? Do any of you have a caringbridge site for your kids ? I have thought about doing one for Braden, but am a little afraid of him or his brother or sist | wilds | Mar-11-05 02:24 PM by Krista | 10 | 3697 |
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is your family supportive ? I'm just wonderinging if anyone else feels the way I do. I don't feel like my family (with the notable exception of one of my my brothers) even tries | wilds | May-12-05 01:11 PM by Krista | 4294967291 | 1081 |
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kids and depression I posted on the main forum about Braden and how depressed he has been. Have any of you found a way to help your children with major medical problems a | wilds | Sep-22-05 09:45 AM by wilds | 4 | 827 |
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caringbridge pages www.caringbridge.org
is a great place to set up websites for kids with chronic/serious illnesses to help keep people informed about what is going on. | wilds | Nov-15-05 09:31 PM by wilds | 4 | 1120 |
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help for siblings Here's some info for parents to help the siblings of kids with major medical problems. The site this is from is for siblings of kids with cancer but I | wilds | Mar-08-06 02:05 AM | 0 | 702 |
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my sisters This was posted on a site I belong to for kids with liver disease and I loved it.
To You, My Sisters
By Maureen K. Higgins
Many of you I have n | wilds | Mar-21-06 04:04 PM by kschenker | 4294967290 | 1255 |
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help for those with mobility challenges I saw this and thought it was a great idea for those with challenges with their mobility and those who care for them. It's a seat in a vehicle that ca | wilds | Dec-18-06 08:30 AM | 0 | 689 |
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what brings you to this forum For those of you who don't know me - probably most of you don't know me- i am an old timer and and haven't been around lately- too much going on and t | wilds | Jan-06-08 09:18 PM by Valerieben | 34 | 6595 |
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what do you need for help ? Please let me know what you could use for help and support for your family with a special needs child. I posted a question on Braden's CB site for tho | wilds | May-23-09 01:28 PM by wilds | 9 | 1912 |
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do you do this too ? Try to spare others your struggles, hurts and heartaches and put on a brave face ? I wrote in Braden's caringbridge journal today about this in hopes | wilds | Oct-05-09 09:16 AM by wilds | 10 | 1986 |
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update on Braden We went to St Louis to see some diagnostic specialists and got some comforting news on one of Braden's issues (HHT- vascular malformations) and some g | wilds | Dec-30-09 05:24 PM by Catw3kittens | 1 | 1753 |