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Top Triplet Talk Triplet Connection Multiple Questions topic #486811
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Subject: "Chiari Malformation....anyone have info?" Previous topic | Next topic
quick4Mon Nov-14-11 02:57 PM
Member since Nov 05th 2007
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#486811, "Chiari Malformation....anyone have info?"


          

Hi, my 3 year old son Aiden has been being patched for 2 months due to one of his eyes turning in. Today the opthamologist suggested he may have Chiari syndrome. Anybody know about this in relation to HOM's or preemies or just in general?

I've googled, but there is a lot to process.

Thanks in advance,
Stephanie

  
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PA tripletsMon Nov-14-11 04:03 PM
Member since Nov 05th 2007
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#486813, "RE: Chiari Malformation....anyone have info?"
In response to Reply # 0

          

I'm sending you a PM on Facebook. A triplet mom on your FB friends list has 2 kids with this and another triplet mom you aren't FB friends with just had surgery herself.

Lori

http://yesidohavemyhandsfull.blogspot.com/

  
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quick4Mon Nov-14-11 04:59 PM
Member since Nov 05th 2007
592 posts 		Click to send email to this author Click to send private message to this authorClick to add this author to your buddy list
#486814, "RE: Chiari Malformation....anyone have info?"
In response to Reply # 1

          

Thanks Lori!

  
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1plustripletsTue Nov-15-11 05:39 PM
Member since Nov 05th 2007
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#486834, "RE: Chiari Malformation....anyone have info?"
In response to Reply # 0

          

Hey Stephanie. I think I'm the Mom that is FB friends with you. Both Brigid and Caroline have Chiaris. Brigid had surgery for it last March. Caroline is getting a wait and see approach. I don't believe there is anything related to it being preemies or HOMs. It's genetic as far as I know.

Email me on FB and I'll help you out if I can!

Kristina
divorced MOM
Megan 7/26/00 Blessed Adoption
Abigail, Brigid, Caroline 6/28/03 IVF

www.tripletsplus1.blogspot.com

  
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foreveramomTue Nov-15-11 08:24 PM
Member since Jan 30th 2006
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#486835, "RE: Chiari Malformation....anyone have info?"
In response to Reply # 0

          

I just had decompression surgery 9 weeks ago. I'd be glad to talk with you about Chiari. Are you on Facebook? My name is Lesa Rhoton. Send me a message and I'd love to share my experience with you.

  
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