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Top Triplet Talk Children With Special Needs topic #4433
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Subject: "Anyone with a child that has Rett Syndrome?" Previous topic | Next topic
mizap74Wed Oct-06-10 12:19 PM
Member since Nov 05th 2007
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#4433, "Anyone with a child that has Rett Syndrome?"


          

Hi;
Just wondering if anyone has a child with Rett Syndrome? My beloved Sarah has just been diagnosed with this hardly-known disease.

Anyone?

~Melissa

Born at 33.1 wks:
Michael Luis - 3 lbs 11 oz.
Jeremy Daniel - 4 lbs 6 oz
Sarah Isabelle - 4 lbs 6 oz.


  
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skh21gsdThu Oct-07-10 09:55 AM
Member since May 25th 2010
2 posts 		Click to send email to this author Click to send private message to this authorClick to view this author's profileClick to add this author to your buddy list
#4434, "RE: Anyone with a child that has Rett Syndrome?"
In response to Reply # 0

          

I am so, so sorry to hear about your poor little Sarah. Rett Syndrome is such a horrible disease. I doubt you will get much traffic here. I recommend that you sign on to the babycenter.com Delayed Darlings group. It is a wonderful support forum for parents of children with many different special needs. One of the group moderators has a 4-year-old daughter with Rett Syndrome. Take care.

  
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mizap74Wed Oct-13-10 10:43 AM
Member since Nov 05th 2007
83 posts 		Click to send email to this author Click to send private message to this authorClick to add this author to your buddy list
#4435, "RE: Anyone with a child that has Rett Syndrome?"
In response to Reply # 1

          

Thanks so much. I will do that.

Born at 33.1 wks:
Michael Luis - 3 lbs 11 oz.
Jeremy Daniel - 4 lbs 6 oz
Sarah Isabelle - 4 lbs 6 oz.


  
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