I have quadruplets, Cade has a very complicated case of Hydrocephalus, he has three shunts and has had 18 surgeries. I am on the hunt for programs and help. If anyone has any info that might be of help, please let me know.

Mel

Hello, one of our little gals also has hydrocephlus and spina bifida, she is 8 months old. We are currently struggling to find out how to help her through this. She has one shunt however, she still shows signs of having pressure. It didn't seem to help much and our doctor doesn't know what to do now. He metioned having a third ventriculostomy surgery however, he seems inconclusive if it would solve her problem or not. Here are some searches for more information and resources.

Medtronic
National Institute of Neurological Disorders and Stroke
Hydrocephalus Association
Hydrocephalus Foundation

4/23/2010
30 weeks
Reese 3.2 lb
Ryann 3.5 lb
Regan 2.15 lb